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ABOUT US

Sickle Cell Disease Association of Illinois (SCDAI) was founded in 1971 under the name Midwest Association for Sickle Cell Anemia (MASCA).

 

SCDAI is a founding member of the Sickle Cell Disease Association of America (SCDAA), a 57 member community-based membership organization in the U.S.

SCDAI xmas party.jpg

MISSION STATEMENT

Sickle Cell Disease Association of Illinois’ (SCDAI) primary mission is to enhance the quality of life for people with sickle cell disease and their families. To effectively achieve this goal, SCDAI acts as an advocate for improved healthcare and services for sickle cell patients by educating and informing the community through outreach programs.

HISTORY & ACCOMPLISHMENTS

TaLana Hughes MPH, Executive Director

I am a mother of a daughter with Sickle Cell Disease "SS" and I work day to day to decrease the barriers and hurdles individuals and their families face when trying to access quality care. Second, I would like to congratulate YOU for your continued dedication to stand shoulder to shoulder in helping provide a voice and work effortlessly to ensure that Sickle Cell remains at the forefront of medicine! We are appreciative of our long time supporters and welcome with open arms the new families and friends who have and will continue to join our team. We cannot fight this battle alone. Everything that we do, we do with the best intentions for our families living day to day with a disease that is very unpredictable and painful! It is our hope that you will be an active, engaged and vocal participant in our efforts.

 

Remember, sickle cell is not a hindrance…it is a lifestyle!

STAFF

Demetra Gaines
Community Health Worker/Outreach Coordinator (Peoria, IL)
demetragaines@scdai.org

Yvonne Willliams
Data Coordinator
yvonnewilliams@scdai.org

Diamontae Hughes, BSCHS
Community Health Worker
diamontaehughes@scdai.org

Diamond Hughes, B.S.
Community Health Worker
diamondhughes@scdai.org

BOARD

Officers
Darryl H. Armstrong, Chairman
Bettiann Gardner, Lifetime Trustee

Members-At-Large
Lewis Hsu, MD, PhD
Shivi Jain, MD
Dennis McCullum
Dwayne Ross, MBA
Tammy Smith
Toni L. Oats
Valerie C. Beckley, Executive Director Commemoratus
Howard D. Anderson, President Emeritus Commemoratus

Photo: Taken at 2024 SCDAA National Convention

© 2025 by SCDAI

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