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EDUCATION & RESOURCES

We have extensive resources to help you understand what sickle cell disease (SCD) and sickle cell trait (SCT) are, what treatments exist, and more. Please explore this page and, if you think anything is missing, please let us know!

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SCD & SCT

The basics on SCD, SCT, complications, and treatments.

SCHOOL & SCHOLARSHIPS

Resources for parents, school nurses, and students.

GENERAL HEALTH

Information on finding good care, navigating insurance, and more.

STATE & NATIONAL ORGS

Get more support from other organizations & government agencies.

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THE BASICS

Sickle cell disease (SCD) is a group of inherited red blood cell disorders. In SCD, the red blood cells become hard and sticky and look like a C-shaped farm tool called a "sickle."

 

It is estimated that:

  • SCD affects 90,000 to 100,000 Americans.

  • SCD occurs among about 1 out of every 365 Black or African-American births.

  • SCD occurs among about 1 out of every 36,000 Hispanic-American births.

  • SCT occurs among about 1 in 12 Blacks or African Americans.

 

People with SCD can live full lives and enjoy most of the activities that other people do. If you have SCD, it's important to learn how to stay as health as possible.

Cell & Gene Therapy (CGT) Grant

Support Opportunities for Patients

 

CGT Grant aims to provide patient support for those who qualify for Cell & Gene Therapy (CGT). We offer wraparound services such as:

  • Patient education throughout the process

  • Screenings & Care Coordination

  • Support for non-Medicaid covered lodging/housing to address barriers before & after treatment

  • Nutrition support

  • Childcare reimbursement when provided by a licensed childcare provider

  • Parking Reimbursement for CGT appointments

  • Direct Patient/Peer support connections

 

Please reach out to learn more!
Email: sicklecelldiseaseillinois@gmail.com
Phone: 773-526-5016

 

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Recursos en Español

© 2026 by SCDAI

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